The Texas Rare Action Network and Baylor College of Medicine/Texas Children’s Hospital Genetics invites you to join patients, families, caregivers, and other rare disease community members at The Health Museum on April 12 from 11 a.m. to 2 p.m. for a family friendly event. Attendees will have the opportunity to meet other patients and caregivers, get connected to community based organizations, and enjoy the museum for free! Click here to register.
One in 10 Americans lives with rare disease, many of whom fight a daily battle to access the care and support they need. Your gift to the National Organization for Rare Disorders (NORD®) funds life-changing programs and helps us advance policies and research to ensure that everyone gets the care they need AND deserve.
