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Free Educational Webinar Policy 101: Role of Government in Rare Disease Policy and Tips to Advocate for You and Your Loved One

February 20 @ 1:00 pm - 2:00 pm

Your local and state governments, as well as the Federal government, each play an integral role in enacting and implementing policy that affects the health and well-being of individuals with rare diseases.
Join NORD for an educational webinar that explains the role of each form of government and the rare disease policies they oversee. You will also learn how to successfully advocate with each government for you or your loved one. Upon completion, you will understand the nuanced roles each form of government plays, and how you can advocate with each.
Tuesday, February 20
2:00 p.m. EST
Webinar Speakers:
Paul Melmeyer: NORD Director of Federal Policy
Tim Boyd, MPH: NORD Director of State Policy
Sika Dunyoh: NORD Director of Education Programs