IDF Retreats are weekend gatherings designed with everyone in the primary immunodeficiency community in mind—including you! Patients, parents, siblings, children and partners are encouraged to attend and learn how to develop better approaches to living with primary immunodeficiency. Plus, you can connect with others going through similar experiences and have some fun!
Topics Presented*
- Primary Immunodeficiencies & General Care
- Dealing with Respiratory Issues
- Autoimmunity & Immunodeficiency –
What’s the Relationship?
- Managing Gastrointestinal Complications
- Living Life to the Fullest with PI
- Clinical Trials – What to Consider
- Complementary & Alternative Medicine
- Ig Therapy – Practical Concerns
- Health Insurance – Get the Facts
- PI Life Stages Panel
Presenters*
- Francisco Bonilla, MD, PhD
Boston Children’s Hospital
- Colleen H. Dansereau, MSN, RN, CPN, CPHON
Dana-Farber Boston Children’s Cancer and Blood Disorders Center
- Terry Harville, MD, PhD
University of Arkansas for Medical Sciences
- Anna Kovalszki, MD
Beth Israel Medical Center
- Jodi Taub, LCSW
Private Practice
- Jolan Walter, MD, PhD
Massachusetts General Hospital
- Linda Schneider, BSN, RN, CPN, IgCN
The Children’s Hospital of Philadelphia
This is not a NORD sponsored event. This event is being hosted by a NORD member organization.
