Peroxisomal Biogenesis Disorder (PBD) is a spectrum disorder that affects 1 in 50,000 children, and is extremely devastating to a family. Many children affected with the disorder, like Ilan, do not live past the first years of life. Nearly all affected children that do live past the first years are usually deaf and blind, and require medical attention throughout the course of their life for feeding, mobility, and communication. The Global Foundation for Peroxisomal Disorders (http://www.thegfpd.org) is a 501(c)(3) public charity committed to funding research to develop a greater understanding of PBD, and to provide support to affected families. All proceeds from the Ilan-a-thon will benefit The Global Foundation for Peroxisomal Disorders.
Over the last several years, the Ilan-a-thon has had nearly 700 attendees and has raised more than $40,000 for the GFPD. These funds were used to support the first official GFPD research grant cycle, which funded PBD research at several research institutions, including the Kennedy Krieger Institute in Baltimore. This year, GFPD funds from the Ilan-a-thon and other fundraisers will be used to support drug screening efforts for PBD at the National Institute of Health in Bethesda, Maryland.
Date: June 4, 2016
Location: 5K Loop, Howard County Fairgrounds, West Friendship, MD
$30 per person ($25 per person pre-registration before January 1, 2016)
$40 per person on the day of the race
$12 per child (12 and under), $15 per child on the day of the race
To register before race day, visit: http://www.eventbee.com/v/ilanathon2016