Rare Disease Journeys
Rocket Pharmaceuticals, Inc., in collaboration with Alexandria Center for Life Science, is proud to sponsor a patient-centered event to provide the NYC biotech community an opportunity to hear firsthand from patients and families living with a rare disease diagnosis about their individual journeys. Patients and families with Danon disease, Fanconi anemia, a primary immune deficiency, and spinal muscular atrophy, will be featured. The 90-minute event is being held on Rare Disease Day at the Alexandria Center for Life Science and will be immediately followed by a networking reception.
Discussion: 3:30 – 5:00p.m.
Networking Reception: 5:00 – 7:00p.m.
RSVP to [email protected]