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Rare Disease Day NYC

February 28, 2019 @ 3:00 pm - 7:00 pm

Rare Disease Journeys

Rocket Pharmaceuticals, Inc., in collaboration with Alexandria Center for Life Science, is proud to sponsor a patient-centered event to provide the NYC biotech community an opportunity to hear firsthand from patients and families living with a rare disease diagnosis about their individual journeys.  Patients and families with Danon disease, Fanconi anemia, a primary immune deficiency, and spinal muscular atrophy, will be featured.  The 90-minute event is being held on Rare Disease Day at the Alexandria Center for Life Science and will be immediately followed by a networking reception.

Discussion: 3:30 – 5:00p.m.
Networking Reception: 5:00 – 7:00p.m.


RSVP to [email protected]


February 28, 2019
3:00 pm - 7:00 pm
Event Category:


Rocket Pharma


Alexandria Center for Life Science
450 East 29th Street
New York, NY 10016 United States
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