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KD Golf CNY Annual Golf Scramble

August 28, 2015 @ 12:00 pm - 7:30 pm

$100 – $400

Kennedy’s Disease is a rare, incurable and non-treatable genetic, progressive neuro-muscular disease. Both the spinal and bulbar neurons are affected causing muscle weakness and wasting throughout the body which is most noticeable in the legs and arms, it is especially noticeable in the face and throat. It causes speech and swallowing difficulties, muscle cramps as well as other symptoms. Generally males with this inherited gene develop symptoms, while females with this gene are usually just carriers. It is estimated that 1 in 40,000 individuals worldwide have Kennedy’s Disease. However, many go undiagnosed or misdiagnosed for years. The most frequent misdiagnosis is the fatal Lou Gehrig’s Disease (ALS). We are trying to raise awareness and funding for this rare disease in order to help find a treatment and eventually a cure, that is where we need your help. We would like to invite you to spend a day on the golf course with golf, food, drinks and prizes! We are also in need of sponsorships and donations for raffle prizes. Please help us raise awareness about this terrible disease by playing in our tournament, becoming a sponsor or even better, both! We look forward to seeing you out on the course!

REGISTRATION

KD Golf CNY

c/o Jason Coopper

4177 Tommys Trail Liverpool, NY 13090

Phone: (315) 447-5851

kdgolfcny@gmail.com

 

$100 Individual Golfer/$400 a Team

Checks payable to: KD Golf CNY

 

 

SCHEDULE OF EVENTS

Registration 12:00 PM

Shotgun Start 1:00 PM

$5K putting contest finals 5:00 PM

Awards, Rafle, Dinners 6:00-7:30 PM

 

 

This is not a NORD sponsord event. This event is being held by Kennedy’s Disease Association, a NORD member organization.

Details

Date:
August 28, 2015
Time:
12:00 pm - 7:30 pm
Cost:
$100 – $400
Event Tags:
,

Organizer

KD Golf CNY
Phone:
(315) 447-581
Email:
kdgolfcny@gmail.com

Venue

Beaver Meadows Golf Club
185 Barnard Rd.
Phoenix, NY 13135 United States
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