Kennedy’s Disease is a rare, incurable and non-treatable genetic, progressive neuro-muscular disease. Both the spinal and bulbar neurons are affected causing muscle weakness and wasting throughout the body which is most noticeable in the legs and arms, it is especially noticeable in the face and throat. It causes speech and swallowing difficulties, muscle cramps as well as other symptoms. Generally males with this inherited gene develop symptoms, while females with this gene are usually just carriers. It is estimated that 1 in 40,000 individuals worldwide have Kennedy’s Disease. However, many go undiagnosed or misdiagnosed for years. The most frequent misdiagnosis is the fatal Lou Gehrig’s Disease (ALS). We are trying to raise awareness and funding for this rare disease in order to help find a treatment and eventually a cure, that is where we need your help. We would like to invite you to spend a day on the golf course with golf, food, drinks and prizes! We are also in need of sponsorships and donations for raffle prizes. Please help us raise awareness about this terrible disease by playing in our tournament, becoming a sponsor or even better, both! We look forward to seeing you out on the course!
KD Golf CNY
c/o Jason Coopper
4177 Tommys Trail Liverpool, NY 13090
Phone: (315) 447-5851
$100 Individual Golfer/$400 a Team
Checks payable to: KD Golf CNY
SCHEDULE OF EVENTS
Registration 12:00 PM
Shotgun Start 1:00 PM
$5K putting contest finals 5:00 PM
Awards, Rafle, Dinners 6:00-7:30 PM
This is not a NORD sponsord event. This event is being held by Kennedy’s Disease Association, a NORD member organization.