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Living Rare, Living Stronger NORD Patient & Family Forum

June 21, 2019 @ 6:00 pm - June 23, 2019 @ 1:00 pm


Join NORD this June for a very special gathering of people living with rare diseases, and the medical professionals working to help improve their lives. Patients and families will gain insights and practical tools through educational sessions and discussions created just for them, with topics to include stress management, gene therapy, insurance and Medicaid access, clinical trials and more.  There will be lots of fun for the kids and adults alike, with a welcome dinner party, games, a wellness room with yoga and self-care workshops for all. Happening in Houston, Texas in June of 2019, this is one rare event not to be missed!

More information is available here.


Hilton Americas-Houston
1600 Lamar Street
Houston, TX 77010 United States
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