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National Policy & Advocacy Taskforce Meeting

February 7 @ 4:00 pm - 5:00 pm EST

Are you passionate about rare diseases and public policy? Are you interested in getting more involved in policy at the federal or state level? In 2023, we are continuing to make our rare voices and priorities heard, and NORD is excited to present a new volunteer opportunity. Our National and Regional Policy & Advocacy Taskforces will provide forums for volunteers to be more deeply involved in grassroots advocacy efforts and push for meaningful policy change for the rare disease community. The Taskforce is open to all, including experienced advocates as well as newcomers – we will offer you the training, mentorship and tools that you need to be successful.

Interested? Join us for our first National Taskforce meeting on February 7th at 4:00 PM EST

Click here to register


February 7
4:00 pm - 5:00 pm EST
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