National Policy & Advocacy Taskforce Meeting

Are you passionate about rare diseases and public policy? Are you interested in getting more involved in federal or state policy, or both? Our National and Regional Policy and Advocacy Taskforces provide forums for volunteers to be more deeply involved in grassroots advocacy efforts and to fight for legislative solutions. The Taskforces are open to all, including experienced advocates and new volunteers, and we will offer you all the training and tools you need to be successful!

Our second National Policy & Advocacy Taskforce meeting will take place on May 23, 2023 from 4:00 – 5:00 PM EST via Zoom. NORD’s Policy team will provide updates on rare disease policy and advocacy opportunities at the federal level. We will also be joined by a few guest speakers to discuss how to have an effective meeting with your elected official. More information to come! You can sign up to receive Taskforce updates, including information about the May 23 National Taskforce meeting, here.