Convening in Room 104A Legislative Office Building, State St. and Washington Ave, Albany, NY 12224
There is no cost to participants to attend this event.
Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event. A resolution acknowledging Rare Disease Day in the state of New York will be read on the floor. Please note, the time for the resolution hearing will be announced the week prior to the event. Following the resolution hearing you will have an opportunity to visit with state legislators and their staff to discuss the challenges rare disease patients face. You will also learn how you can make a difference in the lives of rare disease patients and their families here in our great state of New York.