Rare Cancer Day will be observed for the first time on October 1 to shine a light on the challenges of living with rare cancers, unify individuals living with rare cancers and raise awareness about early diagnosis.
In the Rare Cancers: Facts, Challenges and Patient Stories webinar, NORD will present a panel of speakers including an American Cancer Society researcher, rare cancer patients and advocates to discuss the state of rare cancers in America, share stories of diagnosis and survival and offer ways to get involved.
This webinar is for patients, caregivers, advocates and the public.
John Hopper is the Co-chairman of NORD’s Rare Cancer Coalition, Co-chair of GI Cancers Alliance, Board Director of the National Pancreas Foundation and President of the Fibrolamellar Cancer Foundation.
Carol DeSantis is a cancer epidemiologist and Principal Scientist in the Surveillance and Health Services Research Program at the American Cancer Society.
Kristin Anthony is a two-time cancer survivor and President and Founder of the PTEN Hamartoma Tumor Syndrome Foundation, working to raise funds for research and to educate the public about this rare disease.
Nicholas Lindeback is a young man diagnosed with type 2 neuro-fibromatosis, a rare genetic disorder affecting 1 in 25,000 people worldwide.
Katie Kowalski is the Senior Manager for NORD’s Educational Initiatives.