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North Carolina Rare Disease Day Virtual Event

February 23 @ 12:00 pm - 1:30 pm

North Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate North Carolina legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the North Carolina Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.