Sunday, March 1, 2020 from 1:00pm-4:00pm
Brought to you by the California Rare Action Network, Myotonic and CalRare. Join patients, families, caregivers and all other rare disease stakeholders at this fun, family-friendly event to learn about the challenges rare disease patients face and resources available to address these challenges. You will also be able to connect with other rare families and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of California.
There is no cost to attend this event.
Limited space available and registration is required.