NORD and CBJF and The Sumaira Foundation are hosting Tuesday, February 28, 2023 at 9:00 AM at Case Western Reserve University Tinkham Veale Ballroom 11038 Bellflower Road, Cleveland, OH 44106
You’re invited to join patients, caregivers, and other rare disease advocates as we raise awareness and celebrate the rare disease community! The Ohio Rare Action Network and the CBJF and The Sumaira Foundation will be hosting Ohio Rare Disease Day 2023 in Cleveland on Tuesday, February 28th. Local advocates, community members and those affected by rare diseases have teamed up with the medical and research community from Case Western Reserve University, University Hospitals, MetroHealth, and Cleveland Clinic to raise awareness for rare diseases through this event.
The event will include networking, followed by an informational program. The program will include a series of short presentations, which will address the challenges surrounding the diagnosis and treatment of rare diseases and lack of approved treatment options. The program will also feature the patient perspective and highlight advocacy and legislative efforts. And, we will light up Tower City and the Rock Hall!