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Ohio Rare Disease Day Virtual Event

February 23 @ 10:00 am - 12:00 pm

Ohio Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate Ohio legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on where Ohio is currently in the legislative process to form a Rare Disease Advisory Council (RDAC) and discuss actions you can take to ensure that the Ohio RDAC is a success.

Organizer

NORD Ohio Rare Action Network
Email:
action@rarediseases.org
Website:
RareOH.org