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Pyruvate Kinase Deficiency (PKD): Externally-Led Patient Focused Drug Development Meeting

September 20 @ 9:30 am - 3:30 pm

NORD and the Foundation for Rare Blood Diseases (SZB) invite you to an externally-led Patient Focused Drug Development (EL-PFDD) meeting on Pyruvate Kinase deficiency (PKD), taking place Friday, September 20

If you are a patient, family member or caregiver affected by PKD, this is an important opportunity to have your voice heard. 

EL-PFDD meetings provide an opportunity for patients, their families and caregivers to share critical information about the impact of their disease on their daily lives and their experiences with currently available treatments. Patients’ experiences provide valuable insight for the U.S. Food and Drug Administration (FDA) and other key stakeholders, including researchers, medical product developers and health care providers. 

For more information on PKD and the importance of this meeting, please click here.


Scholarships: 

In order to help with the cost of attending this meeting, NORD has developed a scholarship program. Scholarships are available on a limited basis and must be submitted by Friday, July 26.
Review Guidelines
Scholarship Application

Registration: 

Registration is required in order to attend this meeting. Click here to register.

Hotel Room Block:

To book your group rate for NORD’s Patient Focused Drug Development Meeting, click here.

Venue

College Park Marriott Hotel & Conference Center  
3501 University Blvd E.
Hyattsville, MD 20783 United States
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