Race for 7: Race for 7 is an awareness run organized by Organization For Rare Disease India (ORDI) – a team committed to address the challenges of rare disease patients and their families in India.
Race for 7 is a large-scale nation-wide Awareness Campaign organized by Organization for Rare Disease India (ORDI) in line with World Rare Diseases Day.
Racefor7, the MEGA MARATHON for rare disorders has been a successful national awareness campaign that began in 2016 in Bengaluru. The number of participants in Bengaluru alone was over 3,500 in 2018. In the same year we conducted Racefor7 in Mumbai & Washington where over 1,500 & 100 supporters participated respectively. In 2019 the campaign was hosted by 9 key cities. Racefor7 symbolizes going the distance for rare diseases with people running for 7 kilometres.
Racefor7-2020 is the 5th year of the campaign and is planned at a much larger scale, reaching out to as many as 23 target cities
Purpose: To raise awareness about rare diseases,
To bring together a wide range of stakeholders; to raise awareness; and to sensitize about rare diseases.
To empower patients and their families with access to resources / assured funding for continued treatment
To fuel advocacy efforts at state and national level in devising the right policies in the interest of patients
RARE DISEASES in India affect more people than the name suggests, in fact 1 out of 20 Indians. Among these, 50% are children; sadder still, most of them die before their fifth birthday due to lack of appropriate medical intervention. The scenario worsens due to lack of early diagnosis along with expensive treatment options, which pose major hurdles in rare disease management.
The race against the rare diseases is gaining momentum through continuous small but significant efforts, and we wish to keep leading it through campaigns such as Racefor7
Racefor7 symbolically represents the 7000 rare diseases with 7000 people running for 7 kilometres.
One of them, we’d like to believe, would be you.
Do join ‘Race for 7’, because only our matching strides with rare disease patients would ensure they are not running a losing race.
For Organization for Rare Diseases in India
Co-founder and Executive Director
Mobile: +91 9980133300
Email Id: [email protected]