Rare Action on the Road – Providence

Rhode Island Rare Action Network (RAN) members are invited to join us in-person at the Rhode Island State Library on Friday, November 1 from 9am-12:30pm ET for an advocacy workshop! NORD staff will provide:

• Education on Rare Disease Advisory Councils;
• A workshop on how to advocate when meeting with legislators and staff;
• An overview of NORD and how you can participate in raising awareness for the rare disease community!

Breakfast and lunch will be provided; we hope you will join us! Please click here to register.