Did you know? Rare diseases are not so rare: there are 7,000 rare diseases & disorders that combined affect 30 million Americans–1 in 10 of us–and more than half are children.
People with rare diseases have tremendous unmet needs, including misdiagnosis, a long time to finally receive a correct diagnosis, and when they do, 95% have no treatment with ZERO CURES.
Rare Disease Day® takes place on the last day of February each year. The main objective is to raise awareness with the general public and decision-makers about rare diseases and their impact on patients’ lives. You can make a difference: sign up to receive news and updates, start planning your event, and share feedback and ideas for next year.
Many events are hosted to raise awareness for Rare Disease Day throughout the month of February and on Rare Disease Day. Please visit rarediseaseday.us/events to find and attend an event in the U.S. near you.