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Rare Disease Day at Akron Children’s Hospital

February 29 @ 11:00 am - 4:00 pm EST

An afternoon for genetic and metabolic patients, family members and caregivers, as well as health care providers and research professionals to raise awareness and support for the 300 million people living with rare diseases. We also have the option to attend virtually.

Topics for the day will include:

-Keynote address – Neurodevelopmental differences: genetics, resources and strategies.
-Interactive patient panel – The common unique journey.
-Research in rare diseases.
-Rare disease trivia. (with a prize)
-Contest winner’s personal experience entry will be shared.

In-person guests will be provided lunch and be able to visit booths with information on local resources.

Contest: Virtual and in-person attendees can enter a contest to share a written story, poem, picture or short video clip about their personal experiences with a rare disease diagnosis, including struggles and/or accomplishments. Those who participate have a chance to win a prize, and have their entry shared during the event. Email your contest entry to geneticsforms@akronchildrens.org

Please register for the event at https://www.akronchildrens.org/calendar.html. Go to the events listed for Thursday February 29th – there is an option to register for both in-person and virtual attendance.


February 29
11:00 am - 4:00 pm EST
Event Category:
National Organization for Rare Disorders