Students and faculty at Mill Creek Middle School in Dexter, MI will be participating in fun activities and learning opportunities that highlight the experiences of those in our school and local community that are living with rare diseases. There are several children who attend Mill Creek living with rare and ultra rare disorders. Themes of kindness, compassion, diversity, courage and anti-bullying are emphasized. Lessons on equity, research and access to health care may be offered. This event is sponsored by Kiera’s Hope Project and the CDKL5 Research Collaborative, in honor of those living with CDKL5 Deficiency Disorder and all of Kiera’s friends in the community living with a rare disorder. This is the third year of celebrating rare Disease Day in the Dexter, MI school district. This year Kiera’s awareness campaign has spread to local universities such as the University of Michigan, Eastern Michigan University and Concordia, as well as additional school districts in Ann Arbor and Saline, MI, reaching thousands of people!