Scroll
To Top
Loading Events

« All Events

  • This event has passed.

Rare Disease Day at Nationwide Children’s

February 22 @ 5:00 pm - 7:30 pm

Join us for the 4th Annual Rare Disease Day at Nationwide Children’s to raise awareness of rare diseases and support patients and families affected by them. There is special programing for children from 4-5 pm, followed by invited talks on Research, Advocacy, and Patient Support, and a candid, interactive patient and family discussion panel.
This event is free and open to the public, including patients, their families and caregivers, healthcare providers, and research professionals. The event is all-virtual. Please register at www.nationwidechildrens.org/rare-disease-day/ for connection instructions. Email [email protected]org for more information.

Program Agenda

Keynote Address
Chip Chambers, MD
Founder, DADA2 Foundation
“Linking Patients, Families & Physicians”

Research
Peter White, PhD
Sr. Director, NCH Institute for Genomic Medicine
“You Will Be Found: The Search for Answers in Rare Disease”

Patient Support
Alana Goldstein-Leever, PsyD
Psychologist, Nationwide Children’s
“Supporting Your Child’s Coping with a Rare Disease”

Advocacy
Murugu Manickam, MD
NCH Genomic Medicine
Ohio Rare Disease Advisory Council
“Rare Diseases Care in Public Health”

Details

Date:
February 22
Time:
5:00 pm - 7:30 pm
Event Category:
Website:
https://www.nationwidechildrens.org/specialties/rheumatology/rare-disease-day