Each year, NCATS and the NIH Clinical Center (CC) sponsor Rare Disease Day at NIH as part of this global observance. This year’s global theme is “bridging health and social care(link is external).”
2019 Event Information
Thursday, Feb. 28, 2019
8:30 a.m.-4:00 p.m. ET
Main Auditorium, Natcher Conference Center, Building 45*
National Institutes of Health
*Note new, bigger location for 2019!
Sponsored by NCATS and the CC, this year’s event will feature interactive panel discussions on collective research models for rare diseases, patient registries, rare cancer research initiatives, and “no disease left behind, no patient left behind.” New this year will be a presentation of the first ever Zebbie award for the NCATS Rare Diseases are Not Rare! Challenge. Other highlights include posters and exhibits by rare disease groups and researchers as well as artwork, videos and CC tours. Admission is free and open to the public. In association with Global Genes®, participants are encouraged to wear their favorite pair of jeans. Be sure to follow the event on social media using #RDDNIH.