The California Center for Rare Diseases at UCLA wants to invite you to our Rare Disease Day Webinar. This is free to attend, but you must register. This event runs from 12-115 PST.
We will have several patient and family testimonials, discussing their rare disease journeys and actions they have made to support the rare disease community. We will also have a NORD information and services resource manager speak at our event. The webinar will end with a provider and panelist Q&A.
We hope you can join us!