Loading Events

« All Events

Rare Disease Day Cleveland

February 28 @ 8:30 am - 11:00 am EST

Rdd logo header

The Ohio Rare Action Network invites you to join us for
Rare Disease Day in Cleveland
Tuesday, February 28, 2023 at 8:30 AM
Case Western Reserve University, Tinkham Veale Ballroom, 11038 Bellflower Road, Cleveland, OH 44106

You’re invited to join patients, caregivers, and other rare disease advocates as we raise awareness and celebrate the rare disease community! The Ohio Rare Action Network and the Connor B. Judge Foundation will be hosting Ohio Rare Disease Day 2023 in Cleveland on Tuesday, February 28th. Along with NORD, The Connor B. Judge Foundation and The Sumaira Foundation, this year’s event is also hosted and sponsored by the Research Institute for Children’s Health.

The event will include networking, followed by an informational program. The program will include a series of short presentations, which will address the challenges surrounding the diagnosis and treatment of rare diseases and lack of approved treatment options. The program will also feature the patient perspective and highlight advocacy and legislative efforts.

Register Here

Venue

Case Western Reserve University, Tinkham Veale Ballroom
11038 Bellflower Road
Cleveland, OH 44106 United States
View Venue Website

Organizer

NORD Ohio RareAction Network
Email:
action@rarediseases.org
View Organizer Website
Name(Required)
Hidden