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Rare Disease Day NYC

February 29 @ 3:00 pm - 7:00 pm

Rocket Pharmaceutical’s Rare Disease Day event aims to provide all who attend an opportunity to learn more about rare disease and the need for new treatment options. The event will highlight patient artists who raise awareness of their disease through their artwork. At the event, patient panelists will share their personal experiences with rare disease, and attendees will be given an opportunity to mingle with patients, caregivers, patient advocates, researchers and physicians. Rocket will also have educational materials available to provide patients and with more details about drug development and the clinical trial process.

The theme of Rocket’s Rare Disease Day event is “I am RARE, hear me ROAR,” highlighting the Roaring ‘20s, a decade that saw the discovery of ground-breaking medicines including penicillin and insulin, ultimately saving millions of lives. Throughout the 1920’s, advancements in science led to the development of many new technologies, vaccines and drugs improving healthcare for generations to this day. With the recent advent of genomic medicine and research tools, it has been suggested this decade may demonstrate the true potential of gene therapies.

The event will be held from 3-7 p.m. EST at Carnegie Hall on Saturday, February 29. Please contact [email protected] or visit www.rocketpharma.com for more details and to RSVP if you are interested in attending.

Details

Date:
February 29
Time:
3:00 pm - 7:00 pm
Event Category:
Website:
https://www.rocketpharma.com/patients-and-families/rare-disease-day/#

Venue

Carnegie Hall
881 7th Ave
New York, NY 10019 United States
+ Google Map
Website:
https://www.carnegiehall.org