Desiree Lyon, Director of the American Porphyria Foundation,, was one of the original pioneers of the Orphan Drug Act . she will be presenting the History of the ODA and glimpses of the early work of the patient advocates, researchers and lawmakers on both sides of the aisle, who whose tireless efforts work made the ORD possible.
6 Mistflower Lane
SANTA ROSA BEACH , FLORIDA
Everyone Welcome. 2 PM CST, March 2, 2023