Please join us as we come together as a community to raise awareness for Rare Disease Day 2020. There are many people living with a rare disease but their voices are rarely heard. Rare Disease Day where patients, family, friends,and policy makers, can come together and raise awareness and make sure our voices are heard.
Come to The Get Down Studios and enjoy live performances, Open Dance Cyphers all day, music, rare disease patient resources and information and raffle prizes. This is a free, family friendly event.
Music and Sound by:
DJ Jmix1 Jasen Almazan – San Jose
Get Down Dance Studios – San Jose
Randy WishOne Bernal – San Jose
DJ Zhaldee – Alameda
Dj Jaypee Diaz – GroovMekanex – Bay Area
Capoeira Irmandade – San Jose
Kritika Kumar – India
If you are interested in performing or participating, please DM Fred Briones or email him at [email protected]
If you would like to read about my story and why the Rare Disease Day is important to me, please click on this link to read the San Jose Mercury News article: https://www.mercurynews.com/2017/03/08/silicon-valley-man-takes-on-kennedys-disease/
If you can’t attend but would like to make a donation, please go to our GoFundMe page at https://www.gofundme.com/f/kennedysdiseaseresearch
The money raised from this event will go directly to support the Kennedy’s Disease Association and their research and education efforts. You can visit their site at https://kennedysdisease.org/.
For more information about Rare Disease Day go to https://www.rarediseaseday.org/article/what-is-rare-disease-day
Special thanks to the Get Down Dance Studio for all their support. This could not have been possible with their help. Visit http://www.getdowndancestudios.com/