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Rare Diseases International 5th Annual Meeting

February 20, 2019 @ 8:00 am - 5:00 pm

This will be a unique opportunity to learn from and share with other patient advocates and rare disease stakeholders from around the world.

  • 8:30-10:30 AM EST Rare Diseases International Morning Session (for RDI members only): General Assembly and Membership Meeting
  • 11:00 AM-12:30 PM EST: Global Commission launch meeting (RDI members invited)
  • 1:00 PM – 2:00 PM EST: Lunch for RDI members and Global Commission attendees (in the same venue)
  • 2:00-3:30 PM EST and 4:00-5:30 PM EST Afternoon Sessions (open to all): Interactive sessions to understand, discuss and get further involved in Rare Diseases International’s advocacy plans and activities.

RDI members attending our Annual Meeting are also invited to attend the official launch of the Global Commission to End the Diagnostic Odyssey of Children with a Rare Disease’s (“The Global Commission”) digital roadmap for shortening the time to diagnosis for children with rare diseases worldwide. The Global Commission is a multidisciplinary group of experts formed by Shire, Microsoft and EURORDIS-Rare Diseases Europe with the creativity, technological expertise and commitment required to accelerate time to diagnosis and make a major difference in the lives of millions of children and their families.


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11 Times Square
New York, NY 10036 United States
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