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Rare Policy Response to COVID-19

May 26 @ 1:30 pm - 2:30 pm

In this time of crisis and uncertainty, NORD’s Policy Team has been working to pursue policies at the federal and state levels to address COVID-19 related concerns critical to the rare disease community.

In this monthly Members-Only webinar, we will bring our Policy Team directly to the leaders of our rare disease member organizations to discuss NORD’s response to COVID-19 and provide an update on their work. Topics include:

– Telemedicine access
– Home infusion coverage
– COVID-19 testing
– “Surprise billing”
– Paid Family and Medical Leave
– How to share your issues of concern with NORD
– COVID-19 Virtual Discussion Groups

NORD’s Policy Team is here for you and your community. While this webinar is for nonprofit leaders, any of your organization’s members can participate in our ongoing state-level meetings to engage and share their COVID-19 concerns with NORD. Upcoming state COVID-19 discussion groups can be found her:


May 26
1:30 pm - 2:30 pm
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