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#RAREis Global Advocate Grant: Addressing Issues in the Global Rare Disease Community

February 28 @ 9:55 am - 10:55 am EST

Horizon Therapeutics’ #RAREis Global Advocate Grant expands communication and awareness for the rare disease community by providing financial assistance to global patient advocacy groups working to advance, educate and address challenges faced by rare disease families.

Join us for a global conversation with an incredible panel featuring 2022 #RAREis Global Advocate Grant recipients that will highlight global issues impacting the rare disease community and the current work being done to support people living with the more than 7,000 known rare diseases around the world.

Our panel features:
-Michelle Rivas, senior manager, communications, Horizon Therapeutics
-Sarita Edwards, chief executive officer, E.WE Foundation in the United States
-Adrian Goretzki, LL.M., founder and president, Healthcare Education Institute in Poland
-Nora Leonardi, PhD, co-founder and president, AGO2 Association in Switzerland

Attendees will be able to hear detailed discussions from the experts on topics covering a multitude of themes. Register to join this event to discuss questions including:
-What are some challenges that the rare disease community faces around the world?
-How can companies or organizations effectively and authentically partner with the rare disease community and its allies to drive progress?
-What advice would you give to other organizations and rare disease advocates for continuing to move their work forward?

Learn more about us at RAREisCommunity.com.


February 28
9:55 am - 10:55 am EST
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