Monday April 3 at 12 PM EST (10 AM MST/9 AM PST)
Join us for the April meeting of the Region A Policy & Advocacy Taskforce! This meeting will provide a platform for individuals who live in Washington, Oregon, California, Nevada, Idaho, Utah, Arizona, New Mexico, Colorado, Wyoming, Montana, Alaska, or Hawaii to work with other rare disease advocates in their region to advance policies that benefit the rare disease community. No prior advocacy experience is necessary to join this meeting! We will provide you with the training and tools you need to be a successful rare disease advocate.