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Rett and Related Disorders Family Conference

June 24, 2016 - June 26, 2016

RETTSYNDROME.ORG “MEETS YOU WHERE YOU ARE” WITH OVER 40 SESSIONS TO CHOOSE FROM, FEATURING EXPERTS FROM OVER 15 EXPERT CENTERS

~  nothing replaces the experience of meeting face-to-face  ~

PROGRAM HIGHLIGHTS **NEW** THIS YEAR:

  • Family Research Readiness Arena
  • Clinical trials, Natural History Study, Updates from the Labs
  • Wearables and Monitors – Are They There Yet?
  • Offsites to nearby ABILITIES EXPO (flyer with more details)
  • Expand Horizons with our Related Disorders MECP2 Duplications, CDKL5 Disorder and FOXG1 Syndrome

Session TopIcs:  Genetics, Medical and Symptom Management, Therapies, Communication and Literacy, Hi-Tech Eye Gaze How-To’s for All Ages, School and IEPs , Adulthood Quality of Life, Fundraising,  Advocacy, Awareness

Post-Conference Office Hours and Hands-On Workshop with Communication Experts Sunday Afternoon(separate registration required, opening soon)

 

Why Attend Conference?  We have what you’ve come to expect from Rettsyndrome.org:  top experts, trusted information, and empowerment!  Here’s a keynote Welcome from one of our past conferences – a teaser!

Helping Hands Keepsake Journal – Our Rett syndrome Yearbook.  Place your message of Hope; advertise a business; make a Tribute to your child or grandchild for all to treasure.  Electronic version will be posted to our website after conference for everyone to enjoy!  Submit by May 26th by filling out this form!

Harnessing the power of collaboration and community, Rettsyndrome.org is proud to partner with our related disorders the International Foundation for CDKL5 Research (IFCR); MECP2 Duplication and the International Foundation for FOXG1 (IFF) in some joint sessions of common relevance; meals; receptions; and Respite!

 

This is not a NORD sponsored event. This event is being hosted by a NORD member organization. 

Details

Start:
June 24, 2016
End:
June 26, 2016
Event Category:
Website:
https://www.rettsyndrome.org/for-families/family-conference

Organizer

Rettsyndrome.org
Website:
rettsyndrome.org

Venue

Eaglewood Resort
1401 Nordic Rd.
Itasca, IL 60143 United States
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