~ nothing replaces the experience of meeting face-to-face ~
Session TopIcs: Genetics, Medical and Symptom Management, Therapies, Communication and Literacy, Hi-Tech Eye Gaze How-To’s for All Ages, School and IEPs , Adulthood Quality of Life, Fundraising, Advocacy, Awareness
Post-Conference Office Hours and Hands-On Workshop with Communication Experts Sunday Afternoon(separate registration required, opening soon)
Why Attend Conference? We have what you’ve come to expect from Rettsyndrome.org: top experts, trusted information, and empowerment! Here’s a keynote Welcome from one of our past conferences – a teaser!
Helping Hands Keepsake Journal – Our Rett syndrome Yearbook. Place your message of Hope; advertise a business; make a Tribute to your child or grandchild for all to treasure. Electronic version will be posted to our website after conference for everyone to enjoy! Submit by May 26th by filling out this form!
Harnessing the power of collaboration and community, Rettsyndrome.org is proud to partner with our related disorders the International Foundation for CDKL5 Research (IFCR); MECP2 Duplication and the International Foundation for FOXG1 (IFF) in some joint sessions of common relevance; meals; receptions; and Respite!
This is not a NORD sponsored event. This event is being hosted by a NORD member organization.