The SSADH Association welcomes all patients with SSADH deficiency to the Externally-Led Patient-Focused Drug Development (EL-PFDD) meeting on 7/8 along with families, caregivers, teachers, aids, therapists, researchers, and physicians to engage and give your perspective on daily life with SSADH. The meeting is being held in the Bethesda Marriott Downtown on Friday, July 8. Register here: https://www.ssadh.net/patient-focused-drug-development-meeting/