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The 10th Annual Conference on Advancing Rare Disease Research, Therapy, and Patient Advocacy

January 3, 2019 @ 8:00 am - 5:00 pm

The Boler-Parseghian Center for Rare and Neglected Diseases at the University of Notre Dame researches rare and neglected diseases.  The rarity and lack of research creates desperation among many amazing and dedicated families who are looking to help their loved ones find a cure.

You are invited to share in the experience

Rare Diseases at Notre Dame

Panel discussions to include:

  • Community Resources and Rare Diseases
  • Rare Disease Diagnosis, Treatment and Care
  • Rare Disease Patients and Pharma
  • Patient Family Narratives


January 3, 2019
8:00 am - 5:00 pm
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