What: Rare Disease Day at Coriell Institute for Medical Research
Theme: Patient Advocates as Drivers of Science
Who: Speakers from Coriell’s NIGMS program, Rare disease patients and Penn Medicine/Orphan Disease Center
Why: Through its NIGMS collection and now the partnership with the ODC, Coriell has strong ties with the rare disease community. We wanted to take a moment on this important day to recognize the rare disease patients and family members and the critical role they play in advocating for research.
Format: Networking, speakers during lunch followed by tour of institute.
Invitees: patients/families, scientists, community members, elected officials, other advocates