As part of NORD’s mission to help people affected by rare diseases – more than half of whom are children – we are honored to co-host this tweetchat with the Rare Disease Institute at Children’s National Health System
This is an opportunity for our entire community—patients, families, physicians, researchers, advocates, and others—to come together, learn from one another, and share resources. We will discuss what genetic testing is and isn’t, what we know and what we don’t know, and share valuable resources.
Help Promote the Tweetchat We invite you to share this information through Facebook, Twitter, LinkedIn, newsletters, email blasts or any other communications channels you use. Everyone can participate.
How to Participate in the Tweetchat The only thing you need to participate is an active Twitter account.
Join the tweetchat by logging in to Twitter. Enter into the tweetchat at 1:45 p.m. ET on July 13. Search for the hashtag #genetest101. You can also join the chat by logging into the Twitter management tool that you prefer, such as www.tweetdeck.com or www.tweetchat.com, and search for #genetest101.
Once you are signed in, you are welcome to tweet comments, facts, images, videos, and ask questions as often as you like.
Remember to use the hashtag #genetest101 in all of your tweets. Doing so will link your tweets to the conversation and other content being shared.
When responding to a question, include the letter “A” (for answer) followed by the number of the question that was asked.
Example Question 1: T1: What is genetic testing? #genetest101 Example Response 1: A1: Sequencing of human DNA in order to discover mutations that may prove pathological. #genetest101
Marsha Lanes, Genetic Counselor and Medical Editor at NORD, and Dr. Marshall Summar, Children’s National Director, Rare Disease Institute; Division Chief of Genetics and Metabolism; and Chairman of the Board of Directors at NORD, will be tweeting from @RareDiseases and @ChildrensHealth, and answering your questions. We look forward to your participation!