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Tweetchat on Pediatric Cancers, #KidsCancerChat

September 21, 2016 @ 1:00 pm - 2:00 pm


September is Pediatric Cancer Awareness Month. Did you know that all pediatric cancers are rare?

Tweetchat Coordinates

When: Wednesday, Sept. 21, 1:00 p.m. ET
Tweetchat Hashtag: #KidsCancerChat
Tweetchat Moderator from NORD: @RareDiseases
Tweetchat Co-Host from Texas Childrens: @TexasChildrens
Featured Guests: @CureSarcoma,@NFNetwork, @RareCancerRF & @MPN_RF

As part of NORD’s mission to help people affected by rare diseases – more than half of whom are children – we are honored to co-host this tweetchat with Texas Children‘s Hospital, ranked by U.S News and World Report as one of the top children’s hospitals in the country.

This is an opportunity for our entire community—patients, families, physicians, researchers, advocates, and others—to come together, share resources, and raise awareness. We will discuss cancer-specific topics and ways to support children and families dealing with rare, chronic illnesses. Will you join us?

Featured Guests

Joining the chat as Featured Guests are several NORD Member Organizations that serve pediatric cancer communities.  These include the Sarcoma Foundation of America, Neurofibromatosis Network, Rare Cancer Research Foundation, and the MPN Research Foundation.  They will share their specific expertise and resources.

Help Promote the Tweetchat
We invite you to share this information through Facebook, Twitter, LinkedIn, newsletters, email blasts or any other communications channels you use. Everyone can participate.

How to Participate in the Tweetchat
The only thing you need to participate is an active Twitter account.

  1. Join the tweetchat by logging in to Twitter.  Enter into the tweetchat at 12:45 p.m. EDT on September 21.  Search for the hashtag #KidsCancerChat.  You can also join the chat by logging into the Twitter management tool that you prefer, such as or, and search for #KidsCancerChat.
  2. Once you are signed in, you are welcome to tweet comments, facts, images, videos, and ask questions as often as you like.
  3. Remember to use the hashtag #KidsCancerChat in all of your tweets. Doing so will link your tweets to the conversation and other contentbeing shared.
  4. When responding to a question, include the letter “A” (for answer) followed by the number of the question that was asked.

Example Question 1: T1:  How many pediatric cancers are considered rare diseases? #KidsCancerChat
Example Response 1: A1: All pediatric cancers are considered rare #KidsCancerChat

Mary Dunkle, Vice President for Educational Initiatives at NORD, and Dr. William Parsons, co-director of both the Brain Tumor Program and Cancer and Genomics Program at Texas Children‘s Hospital, will be tweeting from @RareDiseases and @TexasChildrens, and answering your questions.  We look forward to your participation!


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