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Utah Rare Disease Day Gathering

February 28 @ 5:00 pm - 7:00 pm EST

Salt Lake City, Utah, Feb. 21, 2023 (GLOBE NEWSWIRE) — Rare Disease advocacy organizations and biotech and healthcare industry leaders will partner to accelerate the diagnosis and improve the care of more than 344,000 Utahns living with a rare disease. On Rare Disease Day, Feb. 28, 2023, community leaders will host a free event from 5 to 7 p.m. at Recursion Headquarters, 41 South Rio Grande Street in Salt Lake City to provide support and resources for those living or impacted by a rare disease. Additionally, Gov. Spencer J. Cox will declare February 28, 2023 Rare Disease Day in the State of Utah.
Rare disease patients will come together with the RARE and Undiagnosed Network (RUN), Aware of Angels, Global Genes, RARE-X, BioHive, Recursion, Metrodora Institute, ARUP, BioUtah, the University of Utah and the Rare Disease Advisory Council (RDAC) for the Rare Disease Day gathering. The coalition of organizations represents Utah’s strong collaborative ecosystem dedicated to coordinating, advocating, and promoting the interest of those living with rare diseases.


February 28
5:00 pm - 7:00 pm EST
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