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Voices of Patients, Researchers and Resources – A Rare Disease Day Forum

February 28 @ 9:30 am - 10:30 am

In honor of Rare Disease Day, Connecticut Children’s, JAX and UConn Health jointly present a virtual forum for Connecticut rare disease patients, advocates, and policymakers. Please join us via Zoom to hear directly from those living with rare disorders, learn from cutting-edge physician researchers who are committed to identifying treatments and cures, and for information about available resources for families impacted by rare disorders provided by the National Organization for Rare Disorders.

Details

Date:
February 28
Time:
9:30 am - 10:30 am
Event Category:
Website:
https://connecticutchildrens.zoom.us/webinar/register/WN_gxW6ssFiQtyvvFGFGeLVJA