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West Virginia Rare Disease Day Virtual Event

February 23 @ 10:00 am - 11:30 am

West Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important virtual event to educate West Virginia legislators and the general public on the challenges faced by rare disease patients and their families. We will provide an update on the West Virginia Rare Disease Advisory Council (RDAC) and discuss actions you can take to help influence your state’s RDAC efforts.