The Rare Pediatric Disease Priority Review Voucher program creates vital incentives for the development of life-altering treatments for children. The program has helped advance safe and effective treatment options for nearly 40 rare disease states—but it is set to expire September 30, 2024. Legislation was introduced in Congress to reauthorize this important program. Because this legislation is so significant for the rare disease community, NORD will host a webinar to explain how the program works, it’s impact on patients, and how YOU can engage to help get this program reauthorized before it expires.
Register for this free, 45-minute webinar, that will take place July 24 at 2:00pm. This webinar is perfect for advocates, patients, caregivers, students and the public.
Link to Webinar Registration:
