Join the XLH Network for XLH Day on October 6-7, 2017 in Connecticut!
You will meet other families dealing with XLH, discuss the challenges, learn how others cope, and develop new strategies for managing your own or your child’s symptoms. There will be a casual Meet and Greet on Friday evening at the Frank H Netter MD School of Medicine, as well as a dinner gathering on Saturday evening at Wharton Brook State Park, and a Walk/Run fundraiser on Sunday morning. In between, the activities will include an educational program for adults and older children, age-appropriate educational and social programs for children (6-12) and for teens. Infant/toddler care will also be available.
Registration will begin July 9, 2017, at XLHDay.org, and end on September 17, 2017. Registration is free, but required to attend!