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Events for May 1, 2018

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PTEN Hamartoma Tumor Syndrome Awareness Month (PTEN Foundation)

May 1

May is PTEN Hamartoma Tumor Syndrome Awareness Month! This month, the PTEN Foundation will be sharing facts, patient stories and hosting an art contest on their social media. A $100 Visa gift card will be awarded to a child under the age of 18 and an adult over 18 if their art is selected.

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2:00 pm

Patient Registries Webinar: What They Are and How to Start One

May 1 @ 2:00 pm - 3:00 pm

Have you heard of a patient or natural history registry but have no idea what it was? Interested in starting a registry for your patient population but not sure where to start? We will cover these topics and more in an educational webinar on May 1. NORD’s Research Programs Manager, Suzanne Rossov, will give an Read more >

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