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Events for May 2018

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Patient Registries Webinar: What They Are and How to Start One

PTEN Hamartoma Tumor Syndrome Awareness Month (PTEN Foundation)

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9th European Conference on Rare Diseases & Orphan Products

9th European Conference on Rare Diseases & Orphan Products

9th European Conference on Rare Diseases & Orphan Products

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IAMRARE Registry Platform Demo, NORD Research Department-May

NORD’s 35th Anniversary & Rare Impact Awards Celebration

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AAMDSIF Patient & Family Conference – Indianapolis, IN

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2018 Rare Disease Summer Family Camp

2018 Rare Disease Summer Family Camp

Worldwide LAM Awareness Month (LAM Foundation)

2018 Rare Disease Summer Family Camp

2018 Rare Disease Summer Family Camp

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