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2018 Rare Disease Summer Family Camp

May 31, 2018 - June 3, 2018
Hole in the Wall Gang Camp, 555 Ashford Center Road
Ashford, CT 06278 United States
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NORD is proud to again be working with The Hole in the Wall Gang Camp on a rare disease summer family camp in Connecticut! The Hole in the Wall Gang Camp opens its doors to children and families to ensure that every child can experience the transformational spirit and friendships that go hand-in-hand with camp.  Read more >

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Worldwide LAM Awareness Month (LAM Foundation)

June 1, 2018

Lymphangioleiomyomatosis (LAM) is a rare lung disease that usually strikes women during the prime of their lives. June has been designated Worldwide LAM Awareness Month (WWLAM) by the Worldwide LAM Patient Coalition. WWLAM brings together the global community in a collaborative effort to educate the world about the signs and symptoms of LAM, raise funds Read more >

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