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Events for June 2018

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Calendar of Events

Calendar of Events
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2018 Rare Disease Summer Family Camp

2018 Rare Disease Summer Family Camp

Worldwide LAM Awareness Month (LAM Foundation)

2018 Rare Disease Summer Family Camp

2018 Rare Disease Summer Family Camp

Suzanne Wasserman Celebration of Her Life

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Speaking of NEC: Unplugged

Orphan Drug Act Webinar: What Everyone Affected by Rare Disease Should Know

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IAMRARE Registry Platform Demo, NORD Research Department-June

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United Leukodystrophy Foundation Family and Scientific Conference

AAMDSIF Patient & Family Conference – Seattle, WA

United Leukodystrophy Foundation Family and Scientific Conference

United Leukodystrophy Foundation Family and Scientific Conference

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Eighth Biennial Cornelia de Lange Syndrome Scientific & Educational Symposium

Eighth Biennial Cornelia de Lange Syndrome Scientific & Educational Symposium

Hydrocephalus Association National Conference

Hydrocephalus Association National Conference

Hydrocephalus Association National Conference

Alagille Syndrome Alliance Annual Gala: The Dawn of a Dream

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