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Events for July 2018

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Calendar of Events

Calendar of Events
Monday Tuesday Wednesday Thursday Friday Saturday Sunday

United Leukodystrophy Foundation Family and Scientific Conference

26

Eighth Biennial Cornelia de Lange Syndrome Scientific & Educational Symposium

Eighth Biennial Cornelia de Lange Syndrome Scientific & Educational Symposium

Hydrocephalus Association National Conference

Hydrocephalus Association National Conference

Hydrocephalus Association National Conference

Alagille Syndrome Alliance Annual Gala: The Dawn of a Dream

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5

APFED’s 2018 Patient Education Conference for Eosinophilic Gastrointestinal Disorders (EGIDs)

2018 FOD/OAA International Metabolic Conference

APFED’s 2018 Patient Education Conference for Eosinophilic Gastrointestinal Disorders (EGIDs)

2018 FOD/OAA International Metabolic Conference

8

Public Meeting on Patient-Focused Drug Development for Chronic Pain

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12

OIF National Conference 2018

OIF National Conference

OIF National Conference 2018

OIF National Conference

OIF National Conference 2018

OIF National Conference

Turner Syndrome Science in the 21st Century

Turner Syndrome Science in the 21st Century

Turner Syndrome Science in the 21st Century

18

Smith-Magenis Syndrome Conference

IAMRARE Registry Platform Demo, NORD Research Department-July

Smith-Magenis Syndrome Conference

Smith-Magenis Syndrome Conference

Global CMTC-OVM US Annual Conference

FARA rideATAXIA Chicago 2018

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26

The Lmphangiomatosis & Gorham’s Disease Alliance 2018 Patient and Family Conference

The Lmphangiomatosis & Gorham’s Disease Alliance 2018 Patient and Family Conference

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Cloves Awareness Day

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