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Events for February 27, 2019

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10:00 am

Illinois Rare Disease Day 2019

February 27 @ 10:00 am - 3:00 pm
The Inn at 835, 835 South 2nd Street
Springfield, IL 62704 United States
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Please join Illinois Rare Action Network for Rare Disease Day Advocacy Event on February 27, 2019 in Springfield, IL. 10am-11:30am: Breakfast and Advocacy Training Workshop at The Inn at 835, 835 South 2nd Street, Springfield, IL 62704.  11:45am-3:00pm: Legislative Visits at the Illinois State Capitol, 410 S. Second St., Springfield, IL 62704 Patients, families, caregivers, medical professionals and industry representatives Read more >

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12:30 pm

Kentucky Rare Disease Day 2019

February 27 @ 12:30 pm - 1:30 pm
Kentucky State Capitol, Rotunda, 700 Capital Ave
Frankfort, KY 40601 United States
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Please join Kentucky Rare Action Network for Rare Disease Day Advocacy Event on Wednesday, February 27, 2019 from 12:30pm-1:30pm at the Kentucky State Capitol,  700 Capital Ave, Frankfort, Kentucky . Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important event to discuss the challenges rare disease patients face and learn how you can make Read more >

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6:00 pm

Rare Disease Day Panel at Northeastern University

February 27 @ 6:00 pm - 7:30 pm
Raytheon Amphitheater at Northeastern University, 120 Forsyth St
Boston, MA 02115 United States
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Student run Rare Disease Day at Northeastern University! This will consist of an event made to educate the student body about rare disease. It will be a panel of speakers that are all involved in the rare disease community in different ways. There are four speakers: Laurie Edwards, Amal Scott, Donna Duboc, and a representative Read more >

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