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Events for February 27, 2019

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Iron Hack

February 25 @ 8:00 am - February 27 @ 5:00 pm

About one in 10-20 people suffer from orphan diseases, a large of group of 7000 rare diseases each affecting relatively few people, but collectively impacting a large part of the human population. For example, porphyrias are a rare group of eight inherited metabolic disorders of heme biosynthesis. Accumulation of specific heme precursorsis associated with characteristic Read more >

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10:00 am

Illinois Rare Disease Day 2019

February 27 @ 10:00 am - 3:00 pm
The Inn at 835, 835 South 2nd Street
Springfield, IL 62704 United States
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Please join Illinois Rare Action Network for Rare Disease Day Advocacy Event on February 27, 2019 in Springfield, IL. 10am-11:30am: Breakfast and Advocacy Training Workshop at The Inn at 835, 835 South 2nd Street, Springfield, IL 62704.  11:45am-3:00pm: Legislative Visits at the Illinois State Capitol, 410 S. Second St., Springfield, IL 62704 Patients, families, caregivers, medical professionals and industry representatives Read more >

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12:30 pm

Kentucky Rare Disease Day 2019

February 27 @ 12:30 pm - 1:30 pm
Kentucky State Capitol, Rotunda, 700 Capital Ave
Frankfort, KY 40601 United States
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Please join Kentucky Rare Action Network for Rare Disease Day Advocacy Event on Wednesday, February 27, 2019 from 12:30pm-1:30pm at the Kentucky State Capitol,  700 Capital Ave, Frankfort, Kentucky . Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important event to discuss the challenges rare disease patients face and learn how you can make Read more >

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4:00 pm

Rare Disease Day Celebration 2019

February 27 @ 4:00 pm - 8:00 pm

Association Linked: University of Michigan and Lipodystrophy United Date: 27/02/2019-27/02/2019 City: Ann Arbor Address: Brehm Center for Diabetes (1000 Wall Street) Email: elbourkn@med.umich.edu Description of the event: Join us at the University of Michigan's Brehm Center for Diabetic Research as we discuss bridging the gap between health and social care. We will providing an update on the recent exciting Read more >

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6:00 pm

Rare Disease Day Panel at Northeastern University

February 27 @ 6:00 pm - 7:30 pm
Raytheon Amphitheater at Northeastern University, 120 Forsyth St
Boston, MA 02115 United States
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Student run Rare Disease Day at Northeastern University! This will consist of an event made to educate the student body about rare disease. It will be a panel of speakers that are all involved in the rare disease community in different ways. There are four speakers: Laurie Edwards, Amal Scott, Donna Duboc, and a representative Read more >

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