Scroll
To Top
Loading Events

Events for February 28, 2019

Events Search and Views Navigation

Event Views Navigation

All Day

N4R Ham Radio Rare Disease Day Special Event

February 28

Jilly Dybka WA4CZD will be on the air February 28, 2019 with a special event ham radio callsign N4R, for Rare Disease Day. Jilly will be broadcasting from DeKalb County TN (probably from bed). She has been disabled for the past two years with two rare diseases, Ehlers-Danlos Syndrome and Dysautonomia. Tune in if you're in the Read more >

Find out more »

Rare Disease Day Billboard at Times Square for Sarcoidosis

February 28
Times Square Manhattan, 205 W 42nd St
New York, NY 10036 United States
+ Google Map

Okay I am able to make a big announcement for my organization, Sarcoidosis of Long Island of Coram Today I signed for a billboard at Times Square for Rare Disease Day on February 28, 2019. It is a great honor to have my organization at Times Square. It will be running from 10am-10pm 30 times Read more >

Find out more »

8:00 am

Art for Angioma Alliance – online fundraising auction

February 28 @ 8:00 am - 5:00 pm

We believe that nobody should have to suffer a hemorrhage from a cavernous angioma in the brain or spinal cord and that’s why we want to raise some EXTRA AWARENESS for Rare Disease Day this year! Bid on amazing pieces of art in our virtual gallery (on Facebook) and style up your home while contributing Read more >

Find out more »

RARE. Presents: Grow Awareness

February 28 @ 8:00 am - 5:00 pm
The Rivers Edge, 1064 McLean Ave.
Yonkers, NY United States
+ Google Map

This year, join RARE. in our first Rare Disease Day event. RARE. is hosting a Plant'n Sip event to raise funds for the National Organization for Rare Disorders.  Help us "grow" awareness and plant the seeds of the future.  100% of the proceeds from the event will go directly to NORD to promote the wellness Read more >

Find out more »

Rare Disease Day Meet and Greet

February 28 @ 8:00 am - 5:00 pm

The Alle Shea Project invites you to come along to talk with others who know how it feels to have something people don't understand or know much about. Email - allesheaproject@gmail.com

Find out more »

RP – Resilient with Purpose

February 28 @ 8:00 am - 5:00 pm

A global call to action for relapsing polychondritis (RP) patients to proudly participate and #ShowYourRare as RPASF rallies our growing community of patients, family members, friends and supporters to participate in our video production (RP – Resilient with Purpose) to be shared with the world on Rare Disease Day 2019. The Relapsing Polychondritis Awareness and Read more >

Find out more »

Zebra 5K In Person & Virtual

February 28 @ 8:00 am - 5:00 pm

The Zebra 5K Run/Walk hosted by Avery's Hope is an in-person or virtual 5K run OR walk! WHO WE HELP: The Zebra 5k Run/Walk benefits the greater rare disease community. There are nearly 7,000 diseases considered "rare," and approximately 1 in 10 Americans are living with one of these rare diseases or disorders. Help raise awareness for these patients and their families by participating Read more >

Find out more »

‘Come Show you care’ Rare Disease Day Walk/ Roll

February 28 @ 8:00 am - 5:00 pm
Florida’s Forest, 12105 Newport Sound Place
New Smyrna Beach, Florida 32168
+ Google Map

We will be taking to the bike path for a beautiful 2 mile roll through Florida’s forest by bike or by wheelchair. Furry friends welcome! For more information, please contact pomcmomma@hotmail.com

Find out more »

8:30 am

Connecticut Rare Disease Day 2019

February 28 @ 8:30 am - 11:00 am
Legislative Office Building, 2nd floor Atrium, 300 Capitol Avenue
Hartford, CT 06106 United States
+ Google Map

Please join Connecticut Rare Action Network for Rare Disease Day Advocacy Event on February 28, 2019 from 8:30am-11:00am at the Connecticut State Capitol Legislative Office Building, 2nd Floor Atrium, 300 Capitol Avenue, Hartford, CT. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important event to discuss the challenges rare disease patients face and Read more >

Find out more »

Rare Disease Day at NIH

February 28 @ 8:30 am - 4:00 pm
NIH – Main Auditorium, Building 45, 900 Rockville Pike
Bethesda, MD 20892 United States
+ Google Map

Each year, NCATS and the NIH Clinical Center (CC) sponsor Rare Disease Day at NIH as part of this global observance. This year’s global theme is “bridging health and social care(link is external).” 2019 Event Information Thursday, Feb. 28, 2019 8:30 a.m.-4:00 p.m. ET Main Auditorium, Natcher Conference Center, Building 45* National Institutes of Health Bethesda, Maryland *Note new, bigger location for 2019! Sponsored Read more >

Find out more »

10:00 am

Ohio Rare Disease Day 2019

February 28 @ 10:00 am - 2:00 pm
Ohio State House, Governor Thomas Worthington Center, 1 Capitol Square
Columbus, OH 43215 United States
+ Google Map

Please join Ohio Rare Action Network for Rare Disease Day Advocacy Event on February 28, 2019 from 10:00am-2:00pm at the Ohio State House, Governor Thomas Worthington Center, 1 Capitol Square, Columbus, OH 43215. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important event to discuss the challenges rare disease patients face and learn how you Read more >

Find out more »

11:30 am

Arizona Rare Disease Day 2019

February 28 @ 11:30 am - 2:00 pm
Arizona State Capitol, Lawn, 1700 W Washington
Phoenix, AZ 85007 United States
+ Google Map

During the event, advocates will have the opportunity to network with other rare disease patients, caregivers and other health care advocates. In addition, individuals will visit the Executive Office of the Governor to pick up the Rare Disease Day proclamation signed by Douglas A. Ducey. The group will attend the opening session of the afternoon Read more >

Find out more »

12:00 pm

Washington Rare Disease Day 2019

February 28 @ 12:00 pm - 1:00 pm
Washington State Campus, Spokane Campus, Room SAC20, 412 E Spokane Falls Blvd
Spokane, WA 99202 United States
+ Google Map

Please join Washington Rare Action Network for Rare Disease Day Event on February 28, 2019 from 12:00pm-1:00pm at the Washington State Campus, Spokane Campus, Room SAC20, 412 E Spokane Falls, Blvd, Spokane, WA. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important event to discuss the challenges rare disease patients face and learn Read more >

Find out more »

1:00 pm

Oklahoma Rare Disease Day 2019

February 28 @ 1:00 pm - 3:30 pm
Oklahoma State Capitol, 4th Floor Rotunda, 2300 N. Lincoln Blvd
Oklahoma City, OK 73105 United States
+ Google Map

Thursday, February 28, 2019 from 1:00pm-3:30pm Oklahoma State Capitol, 2300 N. Lincoln Blvd, 4th Floor Rotunda Oklahoma City, Oklahoma 73105 Please join patients, families, caregivers, medical professionals and industry representatives at this important event to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare Read more >

Find out more »

3:00 pm

Rare Disease Day NYC

February 28 @ 3:00 pm - 7:00 pm
Alexandria Center for Life Science, 450 East 29th Street
New York, NY 10016 United States
+ Google Map

Rare Disease Journeys Rocket Pharmaceuticals, Inc., in collaboration with Alexandria Center for Life Science, is proud to sponsor a patient-centered event to provide the NYC biotech community an opportunity to hear firsthand from patients and families living with a rare disease diagnosis about their individual journeys.  Patients and families with Danon disease, Fanconi anemia, a Read more >

Find out more »

6:00 pm

Maryland Rare Disease Day 2019

February 28 @ 6:00 pm - 8:00 pm
Bernard W. Brown Community Center, 629 N. Market Street
Frederick, MD 21701 United States
+ Google Map

Please join Maryland Rare Action Network for Rare Disease Day Advocacy Event on Thursday,February 28, 2019 from 6:00pm-8:00pm at Bernard W. Brown Community Center, 629 N. Market Street, Frederick, MD 21701. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important event to discuss the challenges rare disease patients face and learn how you can Read more >

Find out more »

Cambridge BioMarketing’s #FacesofRare

February 28 @ 6:00 pm - 9:00 pm
Boston City Hall, 1 City Hall Square
Boston, MA 02201 United States
+ Google Map

Cambridge BioMarketing, an Ashfield company, part of UDG Healthcare plc and the world’s leading rare disease agency, will project portraits of patients living with rare diseases on the side of Boston City Hall this Thursday, Feb. 28, Rare Disease Day, starting at 6 p.m. ET as part of its #FacesOfRare campaign. The installation, which features Read more >

Find out more »

6:30 pm

Swing for The Kids 2019

February 28 @ 6:30 pm - 9:30 pm
TopGolf, Scottsdale, 9500 Talking Stick Way
Scottsdale, AZ 85256 United States
+ Google Map
$175

The Crain Family Foundation is hosting our third annual Swing fore the Kids Fundraising event at Topgolf! Meet and play with major league baseball players, past and present, fans, family and friends already here for Spring Training, enjoy great food, drinks, and company, AND support an amazing cause! Our event will be held on Thursday, February 28, Read more >

Find out more »
+ Export Events