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Events for March 2, 2019

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9:00 am

San Jose’s First Annual Walk for Rare Diseases

March 2 @ 9:00 am - 12:00 pm
Martin Murphy Middle School, 141 Avenida Espana
San Jose, CA 95139 United States
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y name is Mikela St. John, and I am a Girl Scout of 12 years. I also have VACTERL Association, a rare disease that affects 1.6 out of every 10,000 live births. Through my experience with VACTERL, I've realized that there is not a lot of awareness for a lot of rare diseases. I am Read more >

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11:00 am

Wisconsin Rare Disease Day 2019

March 2 @ 11:00 am - 2:00 pm
Zablocki Pavilion, 3717 W. Howard Avenue
Greenfield, WI 53221 United States
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Please join Wisconsin Rare Action Network for Rare Disease Day Advocacy Event on Saturday, March 2, 2019 from 11:00am-2:00pm at the Zablocki Pavilion, 3717 W. Howard Avenue, Greenfield, WI 53221. Patients, families, caregivers, medical professionals and industry representatives are invited to attend this important event to discuss the challenges rare disease patients face and learn how you can make Read more >

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